My wife has now survived 14 months since diagnosis/treatment of brain mets from ovarian cancer. Last MRI still showed two small mets visible (down from an original 5 mets that were large enough to measure, she had numerous microscopic brain tumors also). Her CA-125 at original OVCA diagnosis was 369, then retreated to 4 after chemotherapy then bounced to 26 when brain mets were discovered 16 months after beginning this journey. Today her CA-125 is still 5, 14 months after WBRT (whole brain radiation). Some current issues as expected with WBRT, lack of stamina, short-term memory issues, some taste issues with food, sight is still not quite back to normal and dizziness/balance issues. Fingers crossed it doesn't get worse.
Is there anyone out there with long-term issues from WBRT??? If so, how are you doing? what is going on?
So few people with ovarian cancer have their first recurrence be brain mets, ugh!! She is still NED elsewhere in her body and has been since the 3rd round of chemo and debulking that was completed 1/2015. She is BRCA 2 positive and has had a preventative mastectomy.