Hi, I'm new to this web..I'm 21 yr old.I'm 'currently' not diagnosed with OC; however, I was hospitalized twice this year because of extreme abdominal pain (this has actually been going for 3-4years but i received little help with the excuse that "I'm too young") and I recently received news that my CA 125 level was 300 -- i have a 8cm ovarian cyst that doubled in size from mid March. I was supposed to get cyst removal surgery by my OB, but now he is warry that it might be cancerous. Unfortunately my insurance company doesnt have a contracted Onc/Cancer specialist so i havent talked to anyone else..
All i know is that I do not have endometriosis and fibroids were not seen. OB said he's not sure what else would elevate my CA 125 level.. and that he isnt going to take a risk on me for the surgery..and that I'd need to speak to a cancer specialist(which i do not have).
Background:
Mom & only Aunt were diagnosed with Stage 4 Triple Negative Breast Cancer (both at 45 yr. Old)
Mom had endometriosis and cyst -- hysterectomy at 37 yr old (ER procedure)
1 of my sisters tested positive for BRCA1, the other has not been tested
( i, myself, have not yet gotten a genetic test)
My symptoms for the past 4 yrs:
Very poor appetite
Extreme abdominal pain-- becoming immobile + shortness of breath
Nausea/Vomiting
Cold sweat & Hot flashes
Muscle spasms
Irregular bowel movements
Daily cramps (600- 800mg ibuprofen at a time for lessen pain)
Lower back pain
Regular menstrual flow for 2-3 days, cycles are regular
Has anyone experienced these symptoms??
What should I expect in case I am diagnosed with OC? (Surgeries /treatment)
What was your CA 125 level when diagnosed and age??
I would really like to be mentally prepared and to explore my options as much as i can!
Thank you!!