Hello everyone. I just joined the CSN and would like hearing about your experiences with these drugs and their side effects. I have recurrent uterine cancer that is being treated as ovarian. I had a hysterectomy in 2015 followed by chemo drugs. Diagnosed again in 2017 and had Carboplatin/then Cisplaten with Gemzar. The scans were inconclusive so I started a regimine of Doxil and Avastin in November. I just started treatment again after a 3 week postponement due to side effects, then a fever.
Now, of course as you know, living with the death sentence of "terminal cancer" is difficult. Very hard to plan. But the hardest part at this time is the burns on my body. My hands and feet swelled up red. My sides were red as if extremely sunburned. My toes are still peeling. My nurse recommended CeraVe. Nothing helped. Now I've seen my gp who offered a cream, and my dermatologist who prescribed another cream to help with the itching. I expect this to start again. My skin is at the itching stage now. Have any of you experienced this and if so, did you find relief somewhere? Thanks in advance.
Another thread asked about CA125. Mine was not a factor in the past but in 2017 went up to 178. It is in the 30s now. I just want to survive this. I keep telling my doctors who didn't expect me to be around this long, I'm still here!
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