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Avastin only for maintenance?

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Hello, I posted this on the uterine board but only received one reply.  I was hoping maybe someone here would be able to help.  I'm on Avastin only for maintenance after going through chemo (carbo/taxol) 3x.  I received my 11th infusion this week and have been doing well.  My onc said my situation is a dilemma because the question becomes when is it time to come off.  I asked if Medicare allows taking a break and then restarting but he said no, they only give you one shot at Avastin.  I suppose because of the expense.  He also said Medicare can bump you off at anytime.  I don't know where things are headed but I was wondering if anyone has been on this treatment and/or if anyone knows the out-of-pocket cost of the drug.  Just trying to do some planning.  Any thoughts appreciated. 

thanks,

Mary Ann

1/2011 - Dx MMMT/TAH/Carbo/Taxol/Brachytherapy

1/2013 - Bilateral lung wedge resection for 2 nodules followed by carbo/taxol

9/2015 - Stereotactic radiation for one lung nodule

12/2017 - Radiation for pelvic tumor followed by carbo/taxol

10/2018 - Started Avastin only for maintenance

 

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