My mom has cancer and our hospital is doing the bare minimum. Please help, it’s breaking my heart watching my mom suffer. She can’t get out of bed other then to the bathroom.
She was diagnosed with stage 3 ovarian cancer in April 2016, fairly quickly after finding out the diagnosis she had surgery to remove the masses & hysterectomy. Weeks following surgery, she started chemo. After her about 4 months of chemo, her cA-125 marker was down and we thought it was gone. But also we knew how aggressive ovarian cancer is and how it comes back often, and it sure did, and she’s been fighting ever since with chemo.
This past November 7th, her oncologist told us the chemo wasn’t working so had her stop chemo and to have them “search for a certain chemo” by a study of her DNA to find a chemo that would work best for the specific tumor. They said it would take 5 weeks for the test to get results. Her ovarian cancer spread throughout her stomach and said possibly her thyroid as well. Her stomach was so big and hard from the tumor. She was suffering, having a hard time breathing so I took her to the ER early December, and they removed fluid but didn’t do anything, because the tumors had grown even more and were crushing her lungs, making it hard for her to breathe. They got her set up on in-home Pallative care after that ER visit, and I got an oxygen machine which helps. We were just waiting for that DNA test to come back, but never did so then looked forward to when Kaiser could schedule her for chemo, but “didn’t have availability” until beginning of the New Year. Which I thought was absolutely ridiculous, I didn’t understand why they couldn’t roll the ive machine for chemo to any chair in the hospital, any chair, even do it in the ER. By the time her chemo date came, Jan 3rd, she was so bad, I set up an ambulance to transport her to her Dr appt/ Chemo so make her as comfortable as possible due to the breathing is the hardest when she is sitting/ standing. I hate myself for not going to that Dr. visit, I set everything up, did everything & they refused to let her do chemo and I received a phone call from her oncologist while she was there that she has a couple days - a couple weeks as the looks of her in the most unprofessional, unethical, manner I have gotten from kaiser ( go back to the same oncologist that I tried just to talk to on the phone in November and never received a phone call even after the nurse said he would). They pressured us for her to go on hospice, by three different representatives of kaiser. (In-home nurses have no shows already twice ... wonderful treatment).
She throws up pretty much everything. She is still all there, please someone help, I’m losing my mind. I wish we could just shrink that [Content removed by CSN Support Team.] tumor or remove it. I’m a young single mom, I work and now take care of my mom and feel helpless for her. Honestly I can’t grasp this, I’ve never experienced a close death and I think that’s why I am losing it, but I don’t show that I’m losing it, I keep it in. I feel like I have to be the strong one in this family. I feel like I’m the only one trying to help my mom. I’m hurting so much. My mom is open to a second opinion if I set it up